RPP SRL

Lobbying Organisation RPP SRL

Date published 12 May, 2021

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2021 to 30 Apr, 2021

Specific Details Right to be Forgotten for cancer survivors, newborn screening for rare diseases and primary immunodeficiencies.

Intended results Implementation of the Right to be Forgotten at national and European level, participation to MEP Group on Newborn Screening and participation to an event.

Name of person primarily responsible for lobbying on this activity Elliot Tricot O’Farrell

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Full Name Prof. Françoise Meunier

CRO number (if applicable)

Principal Address

Contact phone number

Client 2

Company name International Patient Organisation for Primary Immunodeficiencies

CRO number (if applicable)

Company address Avenue Louise/Louizalaan 367, BE-1050 Brussels

Main business or activity Health

Company website

Contact email address johan@ipopi.org

Contact phone number +351 21 407 5720

Contact address

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (11-20)

Phone call (6-10)

Conference Call (2-5)

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Deirdre Clune MEP (European Parliament)