The HeartBeat Trust (The HeartBeat Trust CLG)

Lobbying Organisation The HeartBeat Trust

Date published 18 May, 2016

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Jan, 2016 to 30 Apr, 2016

Specific Details reland’s Health Services both Public and Private are facing huge challenges relating to the enormous increase in, and the inevitable further increase in the incidence and prevalence of chronic disease related to Cardiac, Endocrine and Respiratory illnesses. Since 2004 the Heartbeat trust has been partnering with the pharmaceutical industry, the medtech and med devices sector, the eHealth sector, academia, research entities and service providers to develop new more cost-effective care, treatment

Intended results Support for the expansion of heart failure and heart failure prevention services and research provided by the Heartbeat Trust

Name of person primarily responsible for lobbying on this activity Prof Ken McDonald and Prof Mark Ledwidge Executive Directors, Dr Ciara Keane Project Manager assisted and supported by Dr Ambrose McLoughlin Chair of the Heartbeat Trust and other Board Members as appropriate.

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) Yes

Current or Former Designated Public Official(s)

Dr Ambrose McLoughlin (Former DPO) Secretary General (Department of Health)

Did you manage or direct a grassroots campaign? Yes

What is the directive you gave to the grassroots campaigners? We communicate directly and regularly with patients and families, relevant consultants, general practitioners and other primary care professionals and other voluntary and statutory organisations interested in HBT care, treatment and research programmes and best outcomes for patients. The care and treatment regimens cover both primary and secondary prevention.

Was this lobbying done on behalf of a client? No

Mass communications

Social Media All Oireachtas Members Yes to targeted audiences and to the general public via our website which is regularly updated. Yes we provided regular media briefings, material for national and internal news media.

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (6-10)

Letters to HSE and other public bodies who fund Heart Failure Care, Treatment and Research initiatives. Letters to the Minister, Department of Health, HRB,SFI and Enterprise Ireland who directly or indirectly fund research projects or other initiatives to secure best outcomes for patients. Letters and meetings with a wide variety of interested parties – eHealth Industry, Pharmaceutical Industry,Medtech/med Devices Industry/ Academic and research community/HRB/SFI/EI etc.

Designated public officials lobbied

There were no DPOs directly lobbied during this return period on this specific Subject Matter Area.