The Irish Clinical Oncology Group t/a Cancer Trials Ireland (Cancer Trials Ireland)

Lobbying Organisation The Irish Clinical Oncology Group t/a Cancer Trials Ireland

Date published 19 Sep, 2018

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 May, 2018 to 31 Aug, 2018

Specific Details Invitations to Minister Harris and Muiris O'Connor to International Clinical Trials Day Event 2018, Press Release, Letter to Minister Harris on Recognition Event.

Intended results To have Department of Health representative at the International Clinical Trials Day. Support for Clinical Trial. Support from Minister of Health.

Name of person primarily responsible for lobbying on this activity Ms Eibhlin Mulroe

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emails to the Minister's Office regarding International Clinical Trials Day 2018 on 18th May in Farmleigh House in which Minister Harris has provisionally agreed to be our guest of honor. Minister Harris was unavailable and Muiris O'Connor attended in his place. International Clinical Trials Day is an annual event when we recognise the work and the fantastic contribution patients, who are participating in cancer trials across the country, are making to cancer research. We also used the day to launch our 2018 Just Ask Your Doctor! public information campaign which was a great opportunity to raise the profile of cancer trials locally and nationally.

Letter (1)

Email sent to Sinead Donohue at the Department of Health informing her of Press Release sent out from us on the 5th July 2018 "Cancer Trials Ireland supports call for trial to open in Ireland to study the effectiveness of the drug Pembrolizumab to treat cervical cancer. "

Letter (1)

Letter to Minister Harris looking for his support for a proposed national recognition event. Meeting other trials participants can be of itself be an enormously enriching experience and bring great comfort. It enables people feel part of a national and global effort to protect future generation from the perils of cancer. Receiving a personalised certificate from Minister would enable this impact to continue and for those who have passed away it would be a poignant legacy to their families.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Simon Harris Minister (Department of Health)

Muiris O’Connor Assistant Secretary (Department of Health)