Muscular Dystrophy Society of Ireland GLC (Muscular Dystrophy Ireland)

Lobbying Organisation Muscular Dystrophy Society of Ireland GLC

Date published 20 Sep, 2017

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 May, 2017 to 31 Aug, 2017

Specific Details Lobbying for the reimbursement of Translarna

Intended results Reimbursement of treatment for Duchenne Muscular Dystrophy

Name of person primarily responsible for lobbying on this activity Clair Kelly and Lisa Fenwick

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (2-5)

Letters to An Taoiseach Enda Kenny, An Taoiseach Leo Varadkar, Minister Simon Harris.

Phone call (1)

One phone call with Deputy James Browne

Meeting (1)

One Meeting with Senator John Dolan

Email (1)

Email to Deputy Michael Ring

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Simon Harris Minister (Department of Health)

Leo Varadkar Taoiseach (Department of the Taoiseach)

Enda Kenny Taoiseach (Department of the Taoiseach)

Michael Ring TD (Dáil Éireann, the Oireachtas)

James Browne TD (Dáil Éireann, the Oireachtas)

John Dolan Senator (Seanad)