RPP SRL

Lobbying Organisation RPP SRL

Date published 04 Sep, 2024

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2024 to 31 Aug, 2024

Specific Details Draw attention to the needs of rare disease patients and particularly the inequalities faced by Sickle Cell Disease (SCD) patients.

Intended results Requesting support for our Political Manifesto and a meeting during the Strasbourg Plenary Session in September

Name of person primarily responsible for lobbying on this activity Rossina Funes Santimoni

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name Terumo Blood Cell Technology

CRO number (if applicable)

Company address Ikaroslaan 41, Zaventem, Flemish Region 1930

Main business or activity

Company website https://www.terumobct.com/

Contact email address timea.rezikato@terumbct.com

Contact phone number +32 490016096

Contact address Ikaroslaan 41, Zaventem, Flemish Region 1930

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

We were seeking Sean Kelly's MEP support and requesting a meeting related to Sickle Cell disease.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Sean Kelly MEP (European Parliament)