DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 21 Dec, 2023

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Sep, 2023 to 31 Dec, 2023

Specific Details Follow up to 2024 pre-budget submission

Intended results Increased investment in epidermolysis bullosa in 2024

Name of person primarily responsible for lobbying on this activity Joanna Joyce

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Submission (1)

Business case for enhanced supports for EB sent to Minister of State Anne Rabbitte

Email (2-5)

Emails to Minister Rabbitte's office regarding submission

Informal communication (2-5)

Text messages to Minister Rabbitte on behalf of Debra

Letter (1)

Letter sent to the Minister for Health requesting a meeting.

Email (2-5)

Emails seeking meetings to update members of the Oireachtas on our pre-budget campaign and asking for their support in securing a meeting with Minister of State Anne Rabbitte. Email to the Tánaiste seeking a meeting with Debra.

Informal communication (1)

Text message to Deputy McAuliffe seeking support in securing a meeting with Minister of State Anne Rabbitte.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Anne Rabbitte Minister of State (Department of Children, Equality, Disability, Integration and Youth)

Noel Byrne Special Adviser (Department of Children, Equality, Disability, Integration and Youth)

Stephen Donnelly Minister (Department of Health)

Mary Seery Kearney Senator (Seanad)

Martin Conway Senator (Seanad)

Paul McAuliffe TD (Dáil Éireann, the Oireachtas)

Micheál Martin Tánaiste and Minister (Department of Foreign Affairs)