Rare Diseases Ireland

Lobbying Organisation Rare Diseases Ireland

Date published 21 Jan, 2023

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2022 to 31 Dec, 2022

Specific Details Support for establishment of cross-party rare diseases group

Intended results Establishment of cross party rare disease group at the Oireachtas. Designation of RDI to provide secretariat support for cross party rare disease group at the Oireachtas.

Name of person primarily responsible for lobbying on this activity Vicky McGrath

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emails requesting updates on development of cross-party rare disease group and offering support for secretariat of the group

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)