Health Research Charities Ireland

Lobbying Organisation Health Research Charities Ireland

Date published 06 Jan, 2023

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2022 to 31 Dec, 2022

Specific Details Establishment of National research ethics committee and implementation of EHR's

Intended results Funding for research support within the HSE Ensure national leadership in genomics, through a cross-government approach Urgently progress the implementation of electronic health records Establishment of a national research ethics committee for patient registries

Name of person primarily responsible for lobbying on this activity Dr Avril Kennan

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

Meeting to discuss the HRCI 2022 Position Paper and HRCI advocacy around: 1. Funding for research support within the HSE 2. Ensure national leadership in genomics, through a cross-government approach 3. Urgently progress the implementation of electronic health records 4. Establish a national research ethics committee for patient registries We also requested support for a HRCI presentation being added to the work schedule of the Joint Oireachtas Committee on Health.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

David Cullinane TD (Dáil Éireann, the Oireachtas)