Health Research Charities Ireland

Lobbying Organisation Health Research Charities Ireland

Date published 10 Jan, 2022

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2021 to 31 Dec, 2021

Specific Details Development of a national genomics strategy

Intended results Support for the HRCI call to develop a national genomics strategy

Name of person primarily responsible for lobbying on this activity Dr Avril Kennan and Linda McGrath

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emails to arrange virtual meeting with Neasa Hourigan Sent HRCI Position Paper 2021 and briefing document outlining current advocacy calls • Increased support for clinical research • Development of a national genomics strategy • Patient and public involvement (PPI) integrated into health research policy

Virtual Meeting (1)

Sept 4th meeting to request support for the development of a national genomics strategy through a briefing to be held in the AV room at a suitable future date.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Neasa Hourigan TD (Dáil Éireann, the Oireachtas)