Cystinosis Ireland Ltd (Cystinosis Ireland Ltd)

Lobbying Organisation Cystinosis Ireland Ltd

Date published 17 Sep, 2019

Relevant Matter Legislation

Public Policy Area Health

Period 1 May, 2019 to 31 Aug, 2019

Specific Details Requested a Dail question be raised on the status of the Human Tissue Bill

Intended results Update on the status of the Human Tissue Bill Reinforcement of the need for early passage of the Bill to allow soft opt out to be enacted

Name of person primarily responsible for lobbying on this activity Mick Swift

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

Email to Catherine Halloran to request the assistance of a member of the Technical group in raising our question. Question was raised by Denis Naughton TD in June.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Denis Naughten TD (Dáil Éireann, the Oireachtas)