Multiple Sclerosis Ireland

Lobbying Organisation Multiple Sclerosis Ireland

Date published 01 May, 2018

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Jan, 2018 to 30 Apr, 2018

Specific Details Access to new MS medications

Intended results Review of current system of medications reimbursement and access

Name of person primarily responsible for lobbying on this activity Harriet Doig - Information, Advocacy and Research Officer

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Mass communications

Event / Reception All Oireachtas Members Emails sent to all TDs, Senators and Councillors inviting them to attend the MSunderstood coffee shop event on 28th March, to raise awareness of difficulties of living with MS and call for improved access to medications.

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

Donnchadh Ó Laoghaire, Cllr Mark Ward, James Lawless, Fiona O’Loughlin and John Brassil attended the MSunderstood coffee shop event

Email (2-5)

Emails to Councillor Mark Ward asking for his support for our call for improved access to medications and drawing his attention to new website www.patientsdeservebetter.com

Email (1)

Email sent to Minister Simon Harris inviting him to Wicklow Branch AGM, with the intention of discussing access to medicines issues.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Donnachadh O’Laoghaire TD (Dáil Éireann, the Oireachtas)

Mark Ward Councillor (South Dublin County Council)

James Lawless TD (Dáil Éireann, the Oireachtas)

Fiona O'Loughlin TD (Dáil Éireann, the Oireachtas)

John Brassil TD (Dáil Éireann, the Oireachtas)

Simon Harris Minister (Department of Health)