Health Research Charities Ireland

Lobbying Organisation Health Research Charities Ireland

Date published 15 May, 2017

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2017 to 30 Apr, 2017

Specific Details A commitment to increased investment for medical research. o The appointment of a Director of Research in the HSE o The development and maintenance of patient registries. o The passing of the Human Tissue Bill and the Health Information & Patient Safety Bill. o The implementation and resourcing of the National Rare Disease Plan. o The publication of National Genetics and Genomics Plan

Intended results To present to the Oireachtas Joint Committee on Health

Name of person primarily responsible for lobbying on this activity Linda McGrath

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emails were sent to the Clerk and Chair of the Oireachtas Joint Committee on Health to request the opportunity to present. The MRCG were informed that the Committee would not be in a position to hear a presentation at this time due to a full work programme.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Michael Harty TD (Dáil Éireann, the Oireachtas)