Biogen Idec (Ireland) Ltd (Biogen Idec (Ireland) Ltd )

Lobbying Organisation Biogen Idec (Ireland) Ltd

Date published 18 Sep, 2026

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Sep. 2026 to 31 Dec. 2026

Specific Details Access to treatments for spinal muscular dystrophy for adults

Intended results Supporting discussions on making Spinraza (nusinersen) available to adult patients in Ireland, in line with many European countries

Name of person primarily responsible for lobbying on this activity Sam Graham

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Virtual Meeting (1)

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

William Aird TD (Dáil Éireann, the Oireachtas)