Novartis Ireland Limited

Lobbying Organisation Novartis Ireland Limited

Date published 23 Apr, 2024

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Jan, 2024 to 30 Apr, 2024

Specific Details Newborn screening for spinal muscular atrophy (SMA) is implemented for babies in Ireland

Intended results Newborn screening for spinal muscular atrophy is implemented for babies in Ireland

Name of person primarily responsible for lobbying on this activity Jonathan O'Grady SMA Ireland

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

Requesting the placement of PQ or to raise implementation of newborn screening for SMA in the Dail

Letter (1)

Requesting the implementation of newborn screening for SMA

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

John Lahart TD (Dáil Éireann, the Oireachtas)

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)

Pauline Tully TD (Dáil Éireann, the Oireachtas)

Colm Burke TD (Dáil Éireann, the Oireachtas)

Neasa Hourigan TD (Dáil Éireann, the Oireachtas)

Stephen Donnelly Minister (Department of Health)