Huntington's Disease Association of Ireland

Lobbying Organisation Huntington's Disease Association of Ireland

Date published 04 Sep, 2023

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 May, 2023 to 31 Aug, 2023

Specific Details To advocate for a coordinated specialist service for families affected by Huntington’s Disease. Specifically to seek support for a Huntington's Disease out-reach demonstrator project.

Intended results To secure support for the development of a coordinated specialist service for families affected by Huntington's Disease by continuing to highlight the complexity of this disease, the generational impact, the lack of appropriate coordinated services and the barriers preventing access to existing health services

Name of person primarily responsible for lobbying on this activity Patricia Towey

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (1)

HDAI wrote to Minister Butler and Minister Rabbitte to share a business plan for a proposed outreach specialist Huntington's Disease service submitted for this year's estimates process and to ask for their support for this demonstrator project.

Email (6-10)

HDAI sent an email to TDs, with whom we have previously corresponded, to share a business plan for a proposed outreach specialist Huntington's Disease service and to ask them to contact Minister Butler and Minister Rabbitte to express their support for this proposed service.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Mary Butler Minister of State (Department of Health)

Anne Rabbitte Minister of State (Department of Children, Equality, Disability, Integration and Youth)

John Lahart TD (Dáil Éireann, the Oireachtas)

James Lawless TD (Dáil Éireann, the Oireachtas)

Michael Moynihan TD (Dáil Éireann, the Oireachtas)

Jim O'Callaghan TD (Dáil Éireann, the Oireachtas)

Darragh O'Brien Minister (Department of Housing, Local Government and Heritage)

Cathal Crowe TD (Dáil Éireann, the Oireachtas)

Seán Ó Fearghaíl TD (Dáil Éireann, the Oireachtas)

Brendan Smith TD (Dáil Éireann, the Oireachtas)

Thomas Byrne TD (Dáil Éireann, the Oireachtas)

Jackie Cahill TD (Dáil Éireann, the Oireachtas)