Irish Platform for Patients' Organisations, Science and Industry

Lobbying Organisation Irish Platform for Patients' Organisations, Science and Industry

Date published 18 May, 2023

Relevant Matter Legislation

Public Policy Area Health

Period 1 Jan, 2023 to 30 Apr, 2023

Specific Details Discuss plan to build a data sharing health sector in Ireland

Intended results Hear updates from Government officials on plans to build a data sharing health sector in Ireland. Share our members' perspectives and preferences for data collection, access, sharing and use. Advocate for a rights-based approach to data sharing, in particular, sharing health information with patients, their families and carers, and ideally allowing them to manage their own health data sharing in the future.

Name of person primarily responsible for lobbying on this activity Derick Mitchell

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emails to invite DPOs to speak at conference, to organise briefing calls, to share logistics, to share conference materials.

Virtual Meeting (2-5)

Individual calls with DPOs to brief them on the topic and on the other speakers, panellists, moderators attending.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Barry Lowry Chief Information Officer (Department of Public Expenditure and Reform)

Muiris O’Connor Assistant Secretary (Department of Health)