Epilepsy Ireland

Lobbying Organisation Epilepsy Ireland

Date published 18 Jan, 2022

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2021 to 31 Dec, 2021

Specific Details Raising Epilepsy Ireland ongoing campaign on sodium valproate - need for inquiry, greater risk reduction measures and services for families.

Intended results For Deputies to raise matters with the Minister via PQ To provide Deputies with further information on the issues - specifically on new study around awareness of risk reduction measures amongst healthcare professionals, and the need to act on the study's findings

Name of person primarily responsible for lobbying on this activity Paddy McGeoghegan, Advocacy & Communications Manager

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Phone call (2-5)

Providing further info & advice to Deputy Carol Nolan's team in preparation for Leader's Questions. This includes emails.

Meeting (1)

Meeting with Deputy Fitzmaurice to provide further info on the Sodium Valproate issue.

Letter (1)

Wrote to Minister on the new study regarding awareness of risk reduction measures on sodium valproate.

Email (2-5)

Emails sent to the listed Deputies

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Carol Nolan TD (Dáil Éireann, the Oireachtas)

Michael Fitzmaurice TD (Dáil Éireann, the Oireachtas)

Bríd Smith TD (Dáil Éireann, the Oireachtas)

Seán Crowe TD (Dáil Éireann, the Oireachtas)

Gino Kenny TD (Dáil Éireann, the Oireachtas)

Catherine Connolly TD (Dáil Éireann, the Oireachtas)

David Cullinane TD (Dáil Éireann, the Oireachtas)

Darren O'Rourke TD (Dáil Éireann, the Oireachtas)

Patrick Costello TD (Dáil Éireann, the Oireachtas)

Kathleen Funchion TD (Dáil Éireann, the Oireachtas)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Thomas Pringle TD (Dáil Éireann, the Oireachtas)

Paul Murphy TD (Dáil Éireann, the Oireachtas)

Claire Kerrane TD (Dáil Éireann, the Oireachtas)

Rose Conway-Walsh TD (Dáil Éireann, the Oireachtas)

Seán Canney TD (Dáil Éireann, the Oireachtas)

Denise Mitchell TD (Dáil Éireann, the Oireachtas)

Eoin Ó Broin TD (Dáil Éireann, the Oireachtas)

Robert Troy TD (Dáil Éireann, the Oireachtas)

Joe O'Brien Minister of State (Department of Rural and Community Development)

Emer Higgins TD (Dáil Éireann, the Oireachtas)

Pauline Tully TD (Dáil Éireann, the Oireachtas)

Jim O'Callaghan TD (Dáil Éireann, the Oireachtas)

Ruairí Ó Murchú TD (Dáil Éireann, the Oireachtas)

Marian Harkin TD (Dáil Éireann, the Oireachtas)

Aodhán Ó Ríordáin TD (Dáil Éireann, the Oireachtas)

Neale Richmond TD (Dáil Éireann, the Oireachtas)

Violet Anne Wynne TD (Dáil Éireann, the Oireachtas)

Richard O'Donoghue TD (Dáil Éireann, the Oireachtas)

Louise O'Reilly TD (Dáil Éireann, the Oireachtas)

Mick Barry TD (Dáil Éireann, the Oireachtas)

Jennifer Carroll MacNeill TD (Dáil Éireann, the Oireachtas)

Stephen Donnelly Minister (Department of Health)