Hanover Media Strategy Limited

Lobbying Organisation Hanover Media Strategy Limited

Date published 21 Sep, 2021

Relevant Matter Legislation

Public Policy Area Health

Period 1 May, 2021 to 31 Aug, 2021

Specific Details Medicines Access for Irish patients with rare diseases

Intended results Amendment of the Health (Pricing and Supply of Medical Goods) Act 2013 (the Principal Act) to ensure more equitable access medicines for Irish patients with rare diseases

Name of person primarily responsible for lobbying on this activity Colin O'Donnell

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name ALNYLAM UK LIMITED

CRO number (if applicable) 909214

Company address BLOCK 3 HARCOURT CENTRE HARCOURT ROAD DUBLIN 2 DUBLIN 2, DUBLIN, IRELAND

Main business or activity Health

Company website https://www.alnylam.com/

Contact email address bmartin@alnylam.com

Contact phone number +44 (0) 1628 244966

Contact address

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (1)

Sent letter to Minister for Health supporting legislation to amend the Health (Pricing and Supply of Medical Goods) Act 2013 (the Principal Act) to ensure more equitable access medicines for Irish patients with rare diseases

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Stephen Donnelly Minister (Department of Health)