Huntington's Disease Association of Ireland

Lobbying Organisation Huntington's Disease Association of Ireland

Date published 13 Sep, 2021

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2021 to 31 Aug, 2021

Specific Details During Huntington’s Disease Awareness month (May 2021) we requested TDs, Senators and Councillors with a special interest in health or equality to post their support on social media for the Huntington’s Disease Alliance UK and Ireland #FamilyMatters awareness campaign.

Intended results To raise awareness of the impact of Huntington’s disease on individuals and families affected.

Name of person primarily responsible for lobbying on this activity Patricia Towey

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Mass communications

Email All Oireachtas Members

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Requesting DPO's to post their support on social media for the Huntington’s Disease Alliance UK and Ireland #FamilyMatters awareness campaign in May 2021.

Email (2-5)

To request a joint meeting with Minister Butler and Minister Rabbitte to discuss Huntington's Disease and the need for improved services for Huntington’s Disease families.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Mary Butler Minister of State (Department of Health)

Anne Rabbitte Minister of State (Department of Children, Equality, Disability, Integration and Youth)

Stephen Donnelly Minister (Department of Health)

Colm Burke TD (Dáil Éireann, the Oireachtas)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Cathal Crowe TD (Dáil Éireann, the Oireachtas)

Seán Crowe TD (Dáil Éireann, the Oireachtas)

David Cullinane TD (Dáil Éireann, the Oireachtas)

Bernard Durkan TD (Dáil Éireann, the Oireachtas)

Neasa Hourigan TD (Dáil Éireann, the Oireachtas)

John Lahart TD (Dáil Éireann, the Oireachtas)

Frances Black Senator (Seanad)

David Norris Senator (Seanad)

Frank Feighan Minister of State (Department of Health)

Ivana Bacik Senator (Seanad)

Hazel Chu Councillor (Dublin City Council)

Annie Hoey Senator (Seanad)

Seán Kyne Senator (Seanad)

Martin Conway Senator (Seanad)

Lorraine Clifford-Lee Senator (Seanad)