Hanover Media Strategy Limited

Lobbying Organisation Hanover Media Strategy Limited

Date published 21 May, 2020

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Jan, 2020 to 30 Apr, 2020

Specific Details Treatment of Irish patients with Amyloidosis in Ireland and reimbursement pathway for Alnylam medicines

Intended results Seeking reform of reimbursement process for innovative medicines and therapies treating Irish patients with rare diseases Raising awareness of difficulties faced by Irish patients with hATTR Amyloidosis and seeking policy reform to address same Provide update to political stakeholders on Alnylam medicines currently undergoing the reimbursement process

Name of person primarily responsible for lobbying on this activity Lorna Jennings

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name ALNYLAM UK LIMITED

CRO number (if applicable) 909214

Company address BLOCK 3 HARCOURT CENTRE HARCOURT ROAD DUBLIN 2

Main business or activity Health

Company website https://www.alnylam.com/

Contact email address bmartin@alnylam.com

Contact phone number +44 (0) 1628 244966

Contact address

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Emailed select parliamentarians regarding the treatment of Irish patients with Amyloidosis and to provide update to political stakeholders on Alnylam medicines currently undergoing the reimbursement process

Phone call (2-5)

Held phone calls with select parliamentarians regarding the treatment of Irish patients with Amyloidosis and to provide update to political stakeholders on Alnylam medicines currently undergoing the reimbursement process

Submission (6-10)

Provided briefing document to select parliamentarians regarding the treatment of Irish patients with Amyloidosis and the reimbursement pathway for Alnylam medicines

Meeting (1)

Met with Deputy Colm Burke regarding the treatment of Irish patients with Amyloidosis in Ireland and the reimbursement pathway for Alnylam medicines

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Bernard Durkan TD (Dáil Éireann, the Oireachtas)

Michael Harty TD (Dáil Éireann, the Oireachtas)

Colm Burke TD (Dáil Éireann, the Oireachtas)

Darren O'Rourke TD (Dáil Éireann, the Oireachtas)

Louise O'Reilly TD (Dáil Éireann, the Oireachtas)