Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 21 Jan, 2016

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2015 to 31 Dec, 2015

Specific Details Information session for members of the Oireachtas about Idiopathic Pulmonary Fibrosis (IPF)

Intended results Education and awareness

Name of person primarily responsible for lobbying on this activity Denise Dunne, Management and Development Officer

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) Yes

Current or Former Designated Public Official(s)

Senator Feargal Quinn (Currently employed as a DPO) Senator (Seanad)

Did you manage or direct a grassroots campaign? Yes

What is the directive you gave to the grassroots campaigners? Patients and family members were asked to contact their TDs and advise them of the information session and the publication of the National Charter.

Was this lobbying done on behalf of a client? No

Mass communications

Email All Oireachtas Members Senator Feargal Quinn emailed information about the session to members of the Oireachtas along with a short briefing note.

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

An information session was held in the AV room in Leinster House, Kildare Street, on 6th October, 2015, and a National Charter for Idiopathic Pulmonary Fibrosis was launched. Patients and family members attended and were addressed by Senator Quinn, Professor Jim Egan (Mater University Hospital, Dublin) and Matt Cullen (patient). Prof Egan answered questions and discussed pertinent aspects of care and treatment.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Feargal Quinn Senator (Seanad)

Joan Collins TD (Dáil Éireann, the Oireachtas)

Jerry Buttimer TD (Dáil Éireann, the Oireachtas)

Eric Byrne TD (Dáil Éireann, the Oireachtas)

Jillian van Turnhout Senator (Seanad)

Finian McGrath TD (Dáil Éireann, the Oireachtas)

Billy Kelleher TD (Dáil Éireann, the Oireachtas)

Derek Keating TD (Dáil Éireann, the Oireachtas)

Sean D. Barrett Senator (Seanad)

Richard Boyd Barrett TD (Dáil Éireann, the Oireachtas)