Irish Thoracic Society

Lobbying Organisation Irish Thoracic Society

Date published 20 Sep, 2018

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2018 to 31 Aug, 2018

Specific Details Launch of position statement and national patient registry on Idiopathic Pulmonary Fibrosis

Intended results Appropriate resourcing of centres of expertise and implementation of a standard pathway of care for all patients with Lung Fibrosis in Ireland. Statutory funding to support the development and maintenance of a national patitent registry for lung fibrosis.

Name of person primarily responsible for lobbying on this activity Dr Ross Morgan, President, the Irish Thoracic Society

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Event / Reception (1)

An event to launch the Irish Thoracic Society Position Statement and Patient Registry for Lung Fibrosis attended by Minister Catherine Byrne.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Catherine Byrne Minister of State (Department of Health)