Irish Platform for Patients' Organisations, Science and Industry

Lobbying Organisation Irish Platform for Patients' Organisations, Science and Industry

Date published 04 Sep, 2018

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2018 to 31 Aug, 2018

Specific Details Meeting with Minister for Health about the National Rare Disease Plan

Intended results Support for the full implementation of the National Rare Disease Plan 2014-2018 Support for the development of a follow-on Plan for the period 2018-2021

Name of person primarily responsible for lobbying on this activity Derick Mitchell CEO

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Arranging a meeting time with Minister Simon Harris

Meeting (1)

Meeting on 11 July 2018 at 10-1130am at Leinster House

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Simon Harris Minister (Department of Health)