Multiple Sclerosis Ireland

Lobbying Organisation Multiple Sclerosis Ireland

Date published 01 May, 2018

Relevant Matter Matters involving public funds

Public Policy Area Health

Period 1 Jan, 2018 to 30 Apr, 2018

Specific Details New MS medication ocrelizumab

Intended results Establishment of new system to make ocrelizumab available to people with primary progressive MS as soon as possible

Name of person primarily responsible for lobbying on this activity Harriet Doig - Information, Advocacy and Research Officer

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (6-10)

Emails sent to Minister Simon Harris and Special Advisor requesting a meeting to discuss ocrelizumab. Emails sent to TDs requesting meetings regarding ocrelizumab. Emails sent to TDs requesting PQs be raised to ask Minister Harris if he received MS Ireland's letter on the matter and if he will meet the organisation.

Meeting (1)

Met Michael Harty at a photo-call organised by the Neurological Alliance of Ireland and raised with him our request regarding establishment of a pilot scheme for reimbursement of new MS medication ocrelizumab.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Michael Harty TD (Dáil Éireann, the Oireachtas)

Simon Harris Minister (Department of Health)

Joanne Lonergan Special Adviser (Department of Health)

Stephen Donnelly TD (Dáil Éireann, the Oireachtas)

Billy Kelleher TD (Dáil Éireann, the Oireachtas)