DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 15 Jan, 2018

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2017 to 31 Dec, 2017

Specific Details EB Outreach Nursing Service

Intended results Awareness of EB among local pubic representatives. Securing permanent funding for EB Outreach Nurse and funding for 2 additional Outreach Nurses

Name of person primarily responsible for lobbying on this activity Fiona Aherne

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) Yes

Current or Former Designated Public Official(s)

Paschal Donohoe (Currently employed as a DPO) Minister (Department of Finance)

Caoimhghin O Caolain (Currently employed as a DPO) TD (Department of Health)

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Mass communications

Email All Oireachtas Members Invitation to AV room presentation on the needs of families and patients living with EB on October 25th.

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Submission (1)

Pre-Budget submission on the additional resources required for the EB Service.

Email (11-20)

Invitation to AV room presentation on the needs of families and patients living with EB on October 25th.

Phone call (6-10)

Invitation to AV room presentation on the needs of families and patients living with EB on October 25th.

Meeting (2-5)

Meeting local representatives to discuss the needs of families in those areas.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Colm Burke Senator (Seanad)

Hildegarde Naughton TD (Dáil Éireann, the Oireachtas)

Caoimhghín Ó Caoláin TD (Dáil Éireann, the Oireachtas)

Billy Kelleher TD (Dáil Éireann, the Oireachtas)