DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 07 Sep, 2017

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2017 to 31 Aug, 2017

Specific Details EB Outreach Nursing Service

Intended results Awareness of EB among local pubic representatives. Securing permanent funding for EB Outreach Nurse and funding for 2 additional Outreach Nurses

Name of person primarily responsible for lobbying on this activity Fiona Aherne

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Subject was involving the rights of people with EB in specific constituencies

Phone call (2-5)

Subject was involving the rights of people with EB in specific constituencies

Submission (1)

Pre-Budget Submission to Minister Mc Graths office

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Colm Burke Senator (Seanad)

Hildegarde Naughton TD (Dáil Éireann, the Oireachtas)

Finian McGrath Minister of State (Department of Health)