Rare Diseases Ireland

Lobbying Organisation Rare Diseases Ireland

Date published 21 Sep, 2026

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May. 2026 to 31 Aug. 2026

Specific Details Invitation to Minister to give a key-note address at RDI's associated EU Presidency event

Intended results Minister to agree to speak at associated EU Presidency event on Nov 13

Name of person primarily responsible for lobbying on this activity Vicky McGrath

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (1)

Letter sent to Minister asking her to deliver keynote address at the associated EU Presidency event "Embedding Research and Innovation as Standard of Care in Rare Diseases" on Nov 13 in Dublin

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Jennifer Carroll MacNeill Minister (Department of Health)