Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 21 Jan, 2017

Relevant Matter Matters involving public funds

Public Policy Area Public Expenditure and Reform

Period 1 Sep, 2016 to 31 Dec, 2016

Specific Details ILFA wrote to Ministers Simon Harris, Paschal Donohue, Finian McGrath and Leo Varadker in our capacity as patient organisation representatives to highlight the substantial financial burden to patients depenytsupplemental oxygen via electrical oxygen concentrators.

Intended results Acknowledgement of patient challenges and reimbursement for patients dependent on prescribed supplemental oxygen via electrical oxygen concentrators.

Name of person primarily responsible for lobbying on this activity Nicola Casidy, Director Irish Lung Fibrosis Association

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (2-5)

ILFA wrote to Minister Finian McGrath, Simon Harris, Leo Varadkar and Paschal Donohoe re reimbursement of patients electricity bills who are on oxygen.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Simon Harris Minister (Department of Health)

Leo Varadkar Minister (Department of Social Protection)

Paschal Donohoe Minister (Department of Public Expenditure and Reform)

Finian McGrath Minister of State (Department of Health)