Down Syndrome Ireland

Lobbying Organisation Down Syndrome Ireland

Date published 15 May, 2026

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May. 2026 to 31 Aug. 2026

Specific Details Meeting on work of Down Syndrome Ireland

Intended results Request to join cross party group on Down syndrome.

Name of person primarily responsible for lobbying on this activity Aidan Stacey, Ruth Hickey

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Informal communication (1)

Request for meeting

Meeting (1)

Aidan Stacey CEO met with Ciaran Ahern TD Labour on 19th March. Asking him to join a cross party group on Down Syndrome.

Meeting (1)

Meeting Request to Gillian Toole to be part of a cross party working group to develop a National Strategy for people with Down syndrome.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Ciarán Ahern TD (Dáil Éireann, the Oireachtas)

Gillian Toole Councillor (Meath County Council)