Irish Society for Colitis and Crohn's Disease

Lobbying Organisation Irish Society for Colitis and Crohn's Disease

Date published 21 Jan, 2026

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2025 to 31 Dec, 2025

Specific Details Review of Long Term Illness Scheme; Provided information about Crohn's and Colitis and the ongoing challenges being experienced by patients in Ireland at present.

Intended results To call for a review of the LTI Scheme; Review of the Hidden Costs with Living with IBD in Ireland report conducted by CCI and J&J; Highlighting the Public health Crisis in terms of IBD diagnosis increasing; Highlighting the ongoing challenges faced by both the IBD community and CCI as an organisation in trying to meet the demand in supporting the ongoing rise in prevelance.

Name of person primarily responsible for lobbying on this activity Victoria Spillane

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Lobby day (1)

Presented a brief in the AV Room in Leinster House on November 26th 2025 which was sponsored by Liam Quaide of the Social Democrats. This was carried out by myself and CCI member advocates, and supporters.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Liam Quaide TD (Dáil Éireann, the Oireachtas)

Erin McGreehan TD (Dáil Éireann, the Oireachtas)

Pat Buckley TD (Dáil Éireann, the Oireachtas)

Ged Nash TD (Dáil Éireann, the Oireachtas)