Irish Platform for Patients' Organisations, Science and Industry

Lobbying Organisation Irish Platform for Patients' Organisations, Science and Industry

Date published 19 Dec, 2025

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2025 to 31 Dec, 2025

Specific Details Medicines Assessment and Reimbursement Process in Ireland

Intended results Recommend the establishment of a multi-stakeholder advisory group in January 2026 to advance this and deliver on commitment laid out in Programme for Government

Name of person primarily responsible for lobbying on this activity Laura Brady, IPPOSI CEO

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

Representatives from Rare Diseases Ireland and IPPOSI met with Paidraig O’Sullivan TD, Erin McGreehan TD, Senator Teresa Costello, and Michael Cahill TD to share statistics around access to new medicines in Ireland and the impact this will not only have on patients but also wider innovation landscape based on learnings from Europe.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)

Erin McGreehan TD (Dáil Éireann, the Oireachtas)

Teresa Costello Senator (Seanad)

Michael Cahill TD (Dáil Éireann, the Oireachtas)