Spina Bifida Hydrocephalus Ireland

Lobbying Organisation Spina Bifida Hydrocephalus Ireland

Date published 15 Sep, 2025

Relevant Matter Public policy or programme

Public Policy Area Community

Period 1 May, 2025 to 31 Aug, 2025

Specific Details Government policy on appropriate allocation of resources to enable persons living with Spina Bifida and/or Hydrocephalus to be accommodated appropriately when their primary care (commonly a parent) dies.

Intended results allocation of resources to enable persons living with Spina Bifida and/or Hydrocephalus to be accommodated appropriately when their primary care (commonly a parent) dies

Name of person primarily responsible for lobbying on this activity Gerry Maguire

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Full Name Eileen and Ellen Garvey

CRO number (if applicable)

Principal Address

Contact phone number

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

A parent of a member who had approached her local T.D. to highlight her concerns and asked me to follow up with a support letter to the T.D.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Ged Nash TD (Dáil Éireann, the Oireachtas)