Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 12 May, 2025

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2025 to 30 Apr, 2025

Specific Details Lobbying for a clinical care programme for patients living with a life limiting disease (in Ireland) 'pulmonary fibrosis' and the unmet needs of those patients.

Intended results Lobbying for a clinical care programme for patients living with a life limiting disease (in Ireland) 'pulmonary fibrosis' and the unmet needs of those patients.

Name of person primarily responsible for lobbying on this activity Maureen O'Donnell, ILFA CEO

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

Meeting at Leinster House with David Cullinane on the 5th March ILFA priorities with respect to budget 2025, oxygen, disease management affordability and clinical care programme

Email (2-5)

PQs and follow up from meeting

Meeting (1)

Met Sean Kyne on the 2nd April at Leinster House to explain about a delay in receipt of funding and to request a meeting with the minister of health.

Meeting (1)

Met Catherine Callaghan at Leinster House to discuss her support of lung fibrosis broadly and getting a meeting with Minister

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

David Cullinane TD (Dáil Éireann, the Oireachtas)

John Lahart TD (Dáil Éireann, the Oireachtas)

Seán Kyne Senator (Seanad)

Catherine Callaghan TD (Dáil Éireann, the Oireachtas)