RPP SRL

Lobbying Organisation RPP SRL

Date published 11 Jan, 2023

Relevant Matter Legislation

Public Policy Area Health

Period 1 Sep, 2022 to 31 Dec, 2022

Specific Details To gather support of the European Commission to take into account the special needs of people with Skeletal Dysplasia in the implementation of the Strategy of persons with disabilities 2021-2030 as well as in the revision that is taking place regarding Orphan Medicinal Products regulation.

Intended results To get a host and give a speech at the ‘SD Alliance Presentation Event’ that took place on line on October 26th at the European Parliament.

Name of person primarily responsible for lobbying on this activity Marina Heras Rubio

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name BioMarin Pharmaceticals Inc

CRO number (if applicable)

Company address 770 Lindaro Street, San Rafael, CA 94901, USA

Main business or activity Health

Company website https://www.biomarin.com/

Contact email address Rachel.finnegan@bmrn.com

Contact phone number +44 207 420 0800

Contact address 10 Bloomsbury Way, London, WC1A 2SL, UK

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Email and telephone contact to request Mr Kelley to host Skeletal Dysplasia Alliance presentation virtual event

Phone call (2-5)

Associated phone call related to 1 above.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Seán Kelly MEP (European Parliament)