Irish Platform for Patients' Organisations, Science and Industry

Lobbying Organisation Irish Platform for Patients' Organisations, Science and Industry

Date published 15 Dec, 2022

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2022 to 31 Dec, 2022

Specific Details Invited Deputy Padraig O'Sullivan to speak at the (online) Third Rare Disease Forum, 28 November 2022

Intended results To provide our members with an update on the progress of the private members bill around orphan medicines, and to hear political representative perspectives on the progress of the national rare diseases plan

Name of person primarily responsible for lobbying on this activity Derick Mitchell

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Share details of the event logistics (time, agenda, zoom link) and provide briefing note for speakers

Virtual Meeting (1)

Agree agenda for the rare disease forum and discuss key talking points

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Pádraig O'Sullivan TD (Dáil Éireann, the Oireachtas)