Hume Brophy

Lobbying Organisation Hume Brophy

Date published 18 Jan, 2018

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Sep, 2017 to 31 Dec, 2017

Specific Details Access to treatments for rare diseases

Intended results Equitable access for patients to rare disease therapies

Name of person primarily responsible for lobbying on this activity Ken Waters

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name Shire Pharmaceuticals Ireland Limited

CRO number (if applicable)

Company address BLOCK 2 & 3 MIESIAN PLAZA 50 - 58 BAGGOT STREET LOWER DUBLIN 2

Main business or activity Health

Company website https://www.shire.com/

Contact email address ukandirlcommunications@shire.com

Contact phone number (01) 609 6000

Contact address Floor 3, Block 2, Miesian Plaza, 50-58 Lower Baggot Street Dublin 2, Ireland.

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

Met with Minister Doherty regarding equitable access for patients to rare disease therapies

Email (2-5)

Wrote to Minister Doherty regarding equitable access for patients to rare disease therapies

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Regina Doherty Minister (Department of Employment Affairs and Social Protection)