Disability Federation of Ireland

Lobbying Organisation Disability Federation of Ireland

Date published 19 May, 2017

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2017 to 30 Apr, 2017

Specific Details Seeking to identify the scale of Fetal Valproate Syndrome in Ireland, assess needs of the families affected & put in place appropriate pathways for the diagnosis and treatment & stronger measures to prevent future occurrences of FACS.

Intended results To secure a meeting with the Deputy

Name of person primarily responsible for lobbying on this activity Joan O'Donnell

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) Yes

Current or Former Designated Public Official(s)

John Dolan (Currently employed as a DPO) Senator (Seanad)

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (1)

Letter requesting to meet sent on 21st April 2017 to Billy Kelleher TD, Michael Harty TD, Alan Kelly TD, Kate O'Connell TD, Louise O'Reilly, TD, Keith Swanick Senator, Margaret Murphy O'Mahony TD, Roisin Shorthall TD, and Catherine Murphy TD.

Email (1)

Email thanking Billy Kelleher, TD, for picking up on issue and seeking meeting 28 April 2017.

Phone call (1)

Phonecall to Minister for Health, Simon Harris, seeking meeting 21 April 2017.

Email (1)

Email sent to Minister for Health, Simon Harris, seeking meeting 21 April 2017.

Email (1)

Email asking Senator John Dolan office to chase up meeting with Minister Minister for Health, Simon Harris. 22nd March 2017

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Billy Kelleher TD (Dáil Éireann, the Oireachtas)

Michael Harty TD (Dáil Éireann, the Oireachtas)

Alan Kelly TD (Dáil Éireann, the Oireachtas)

Kate O'Connell TD (Dáil Éireann, the Oireachtas)

Louise O'Reilly TD (Dáil Éireann, the Oireachtas)

Keith Swanick Senator (Seanad)

Margaret Murphy O'Mahony TD (Dáil Éireann, the Oireachtas)

Róisín Shortall TD (Dáil Éireann, the Oireachtas)

Catherine Murphy TD (Dáil Éireann, the Oireachtas)

Simon Harris Minister (Department of Health)