DEBRA Ireland

Lobbying Organisation DEBRA Ireland

Date published 19 May, 2022

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2022 to 30 Apr, 2022

Specific Details Issues affecting people living with epidermolysis bullosa (EB) and the work of DEBRA Ireland

Intended results To raise awareness of the issues affecting people living with EB and the work of DEBRA Ireland

Name of person primarily responsible for lobbying on this activity Jimmy Fearon, Joanna Joyce

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (6-10)

Emails to organise virtual meeting and share key policy asks

Virtual Meeting (1)

Virtual meeting to discuss issues affecting people living with EB and the work of DEBRA Ireland

Informal communication (2-5)

Text messages to organise meeting

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

David Cullinane TD (Dáil Éireann, the Oireachtas)

Chris Andrews TD (Dáil Éireann, the Oireachtas)