Health Research Charities Ireland

Lobbying Organisation Health Research Charities Ireland

Date published 20 Apr, 2022

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2022 to 30 Apr, 2022

Specific Details Ensure national leadership in genomics/ Urgently progress the implementation of electronic health records/ Establish a national research ethics committee for patient registries

Intended results Support for the HRCI calls to ensure national leadership in genomics, through a cross-government approach Establish a national research ethics committee for patient registries. Urgently progress the implementation of electronic health records

Name of person primarily responsible for lobbying on this activity Linda McGrath

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (1)

Emails to arrange meetings re: HRCI Position Paper 2022 and request for support for key recommendations.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Gino Kenny TD (Dáil Éireann, the Oireachtas)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)

Seán Crowe TD (Dáil Éireann, the Oireachtas)

Cathal Crowe TD (Dáil Éireann, the Oireachtas)

Colm Burke TD (Dáil Éireann, the Oireachtas)