RPP SRL

Lobbying Organisation RPP SRL

Date published 15 Sep, 2021

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 May, 2021 to 31 Aug, 2021

Specific Details Newborn screening for rare diseases

Intended results Joining an MEP informal group on newborn screening for rare diseases - Screen 4 Rare

Name of person primarily responsible for lobbying on this activity Tereza Cejkova

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name International Patient Organisation for Primary Immunodeficiencies

CRO number (if applicable)

Company address Avenue Louise/Louizalaan 367 BE-1050 Brussels, Belgium

Main business or activity Health

Company website

Contact email address info@ipopi.org

Contact phone number +44 1503 250 668/961

Contact address

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (2-5)

Phone call (2-5)

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Deirdre Clune MEP (European Parliament)

Clare Daly MEP (European Parliament)

Seán Kelly MEP (European Parliament)

Grace O'Sullivan MEP (European Parliament)

Barry Andrews MEP (European Parliament)