Irish Lung Fibrosis Association

Lobbying Organisation Irish Lung Fibrosis Association

Date published 25 May, 2021

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2021 to 30 Apr, 2021

Specific Details Irish Lung Fibrosis Association Winter Newsletter circulated

Intended results Deliver of Irish Lung Fibrosis Association's Winter Newsletter to the Minister for Health

Name of person primarily responsible for lobbying on this activity Nicola Cassidy

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Letter (1)

Irish Lung Fibrosis Association Spring Newsletter sent to Minister Stephen Donnelly TD

Letter (1)

The Irish Lung Fibrosis Association (ILFA) hosted a virtual 'Word Café Forum' on Pulmonary Fibrosis Services in Ireland During Covid-19 and Beyond and invited Minister Butler, Minister Joe O'Brien, Minister Stephen Donnelly and Minister Roisin Shorthall to join ILFA at the Forum. The 2021 World Café will capture information on your experience of accessing healthcare during Covid19 and your suggestions on how to improve the situation. ILFA is campaigning for a dedicated Clinical Care Programme for Pulmonary Fibrosis from the HSE so that a defined care pathway (model of care) will be introduced to improve the diagnosis and delivery of care for pulmonary fibrosis patients.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Stephen Donnelly Minister (Department of Health)

Mary Butler Minister of State (Department of Health)

Joe O'Brien Minister of State (Department of Rural and Community Development)

Róisín Shorthall TD (Dáil Éireann, the Oireachtas)