Irish Platform for Patients' Organisations, Science and Industry

Lobbying Organisation Irish Platform for Patients' Organisations, Science and Industry

Date published 21 May, 2021

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2021 to 30 Apr, 2021

Specific Details Virtual engagement with Minister Stephen Donnelly, as part of the Rare Disease Taskforce

Intended results A re-establishing of a specific contact point in the Dept of health for Rare Diseases, as well as the regular engagement between the Dept. of health and the rare disease Taskforce

Name of person primarily responsible for lobbying on this activity Derick Mitchell, CEO

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Virtual Meeting (1)

Other members of the Rare Disease Taskforce who joined the call included Philip Watt, CEO of Cystic Fibrosis Ireland, Avril Kennan, CEO of HRCI, Vicky McGrath, CEO of Rare Diseases Ireland, Anne Marie O'Dowd, CEO of Cystenosis Ireland

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Stephen Donnelly Minister (Department of Health)