Hanover Media Strategy Limited

Lobbying Organisation Hanover Media Strategy Limited

Date published 21 Jan, 2019

Relevant Matter Legislation

Public Policy Area Health

Period 1 Sep, 2018 to 31 Dec, 2018

Specific Details Creation of national policy to increase availability of Orphan Medicinal Products

Intended results Implementation of National Rare Disease Plan recommendations regarding treatments for rare diseases Ensure rare disease patients have fair equal access to treatments Amendment to the Health (Pricing and Supply of Medical Goods) Act 2013

Name of person primarily responsible for lobbying on this activity Colin O'Donnell

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? Yes

Client(s)

Client 1

Company name SHIRE PHARMACEUTICALS IRELAND LIMITED

CRO number (if applicable) 349143

Company address BLOCK 2 & 3 MIESIAN PLAZA 50 - 58 BAGGOT STREET LOWER DUBLIN 2

Main business or activity Health

Company website https://www.shire.com/

Contact email address ukandirlcommunications@shire.com

Contact phone number 609 6000

Contact address ukandirlcommunications@shire.com

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (6-10)

Met with select parliamentarians regarding the reimbursement process for Orphan Medicinal Products

Email (11-20)

Emailed select parliamentarians regarding the reimbursement process for Orphan Medicinal Products

Phone call (2-5)

Called select parliamentarians regarding the reimbursement process for Orphan Medicinal Products

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Bernard Durkan TD (Dáil Éireann, the Oireachtas)

Louise O'Reilly TD (Dáil Éireann, the Oireachtas)

Colm Burke Senator (Seanad)

Michael Harty TD (Dáil Éireann, the Oireachtas)

Michael Moynihan TD (Dáil Éireann, the Oireachtas)

Dara Calleary TD (Dáil Éireann, the Oireachtas)

Regina Doherty Minister (Department of Employment Affairs and Social Protection)

John Brassil TD (Dáil Éireann, the Oireachtas)

Pat Deering TD (Dáil Éireann, the Oireachtas)

Bobby Aylward TD (Dáil Éireann, the Oireachtas)