Shine

Lobbying Organisation Shine

Date published 19 Sep, 2017

Relevant Matter Legislation

Public Policy Area Health

Period 1 May, 2017 to 31 Aug, 2017

Specific Details To have Fetal Anticonvulsant Syndrome recognised as a consequence of childbearing mother being treated with the medication Epilim.

Intended results Legislation/regulation to require all pharmaceutical companies to print on their medication boxes the dangers of taking epilim while pregnant. Legislation/regulation to require psychiatrists to educate female patients of dangers of taking epilim when pregnant or prescribe an alternative medication for women of child bearing age.

Name of person primarily responsible for lobbying on this activity Susan McFeely (as part of a consortium of organisation including Shine)

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (51-100)

To have Fetal Anticonvulsant Syndrome recognised as a consequence of childbearing mother being treated with the medication Epilim.

Letter (21-30)

To have Fetal Anticonvulsant Syndrome recognised as a consequence of childbearing mother being treated with the medication Epilim.

Meeting (2-5)

To have Fetal Anticonvulsant Syndrome recognised as a consequence of childbearing mother being treated with the medication Epilim.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Simon Harris Minister (Department of Health)