Irish Society for Colitis and Crohn's Disease

Lobbying Organisation Irish Society for Colitis and Crohn's Disease

Date published 12 Sep, 2023

Relevant Matter Zoning or development

Public Policy Area Health

Period 1 May, 2023 to 31 Aug, 2023

Specific Details Thursday 25th May CCI presented to TD's and Senators in Leinster House in Dublin on what its like to live with IBD. We had the support of Senator Annie Hoey and TD Ged Nash.

Intended results To highlight the problems that people with IBD in Ireland face. Route to diagnosis and A&E admission Access to diagnosis testing and new treatments Long-term Illness Scheme - recognize IBD as a life long illness Financial burden on IBD patients Childhood, adolescent, and transitional to adulthood care Recruitment of further support including psychologists and Dietitians

Name of person primarily responsible for lobbying on this activity Amy Kelly, Victoria Spillane, Karen Byrne

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Mass communications

Email All TDs

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Email (100+)

Dublin Leinster House Highlight problems people living with IBD in Ireland

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Ged Nash TD (Dáil Éireann, the Oireachtas)

Annie Hoey Senator (Seanad)