Jack and Jill Children's Foundation

Lobbying Organisation Jack and Jill Children's Foundation

Date published 20 May, 2019

Relevant Matter Public policy or programme

Public Policy Area Health

Period 1 Jan, 2019 to 30 Apr, 2019

Specific Details Meeting with Minister of Health Simon Harris TD and the Coalition of Paediatric Palliative Care Providers and Consultants with an agenda for discussion including Clarification of commitment to Children's Palliative Care; Commitment of fair funding for Children's Palliative Care; Removal of obstacles for the appointment of a National Programme Manager; Commitment to the development of an agreed plan of work 2020-2022

Intended results For discussion: Clarification of commitment to Children's Palliative Care; Commitment of fair funding for Children's Palliative Care; Removal of obstacles for the appointment of a National Programme Manager; Commitment to the development of an agreed plan of work 2020-2022

Name of person primarily responsible for lobbying on this activity Carmel Doyle, CEO The Jack & Jill Children's Foundation

Did any Designated Public Official(DPO) or former Designated Public Official(DPO) carry out lobbying activities on your behalf in relation to this return? You must include yourself, and answer Yes, if you are a current DPO or a DPO at any time in the past. (What is a Designated Public Official?) No

Did you manage or direct a grassroots campaign? No

Was this lobbying done on behalf of a client? No

Lobbying activity

The following activities occurred for this specific Subject Matter Area.

Meeting (1)

The meeting with Minister Harris and the Coalition of Paediatric Palliative Care Providers and Consultants delegation took place on 28th February in Leinster House. The attendees from the Coalition were Dr. Fiona McElligott, Consultant in Paediatric Palliative Care, Temple Street: Sharon Foley, CEO, Irish Hospice Foundation: Carmel Doyle, CEO, Jack & Jill and Orla O'Brien, CEO, LauraLynn

Letter (1)

A letter following up on what was discussed at the meeting was issued to Minster Harris, and cc'd to Sheilagh Reaper Reynolds (HSE) and Vincent Lacey (Dept of Health) The letter was issued on behalf of the delegation including Carmel Doyle, CEO, Jack & Jill.

Designated public officials lobbied

The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.

Simon Harris TD (Dáil Éireann, the Oireachtas)