Rare Diseases Ireland
Mass communications
Lobbying activity
The following activities occurred for this specific Subject Matter Area.
Meeting (1)
Presentation at cross Party Group on Rare Diseases meeting attended by TDs & Senators, healthcare professionals and patient advocates and people living with rare diseases to highlight the challenges accessing orphan medicines and the need for an early access scheme.
Letter (1)
Letter sent to Health Minister seeking meeting to discuss development of an early access scheme for rare diseases.
Email (1)
Follow up email thanking TDs and Senators for support and noting dispatch of letter to Minister on the topic of access to medicines.
Email (1)
Follow up email sharing presentation and handout from APG meeting with TDs & Senators requesting further information.
Designated public officials lobbied
The following DPOs were lobbied during this return period on this specific Subject Matter Area. These DPOs were involved in at least one of the Lobbying Activities listed above, but not necessarily all of them. As returns are specific to a Subject Matter Area the above Lobbying Activities may be associated with multiple returns.